I wear the words “Be Brave” etched on stainless steel wrapped around my wrist with strips of purple leather that represent the official color of Crohn’s and Colitis awareness.
These are the words that get me through each day as a Crohn’s Disease warrior.
When I get out of bed and my first thought is, “How much will I hurt today,” I must be brave.
Each day, I look at my calendar and weigh all the tasks on my to-do list against my level of pain. I wonder, “How am I going to get through this day?” before I look to my wrist and read the answer–”Be Brave.”
When the Young One looks at me with sadness, and asks “When are you going to be done being sick?”, I think to myself, “Be Brave”, as I try to find a way to tell her I will always be sick, but some days will be better than others.
I think of the events on the horizon–dinner parties, birthdays, homecomings, project deadlines, and I know I can’t do it all right now. So I tell myself to “Be Brave” as I make the decision of who to disappoint today. The Hubs? The kids? The boss? Myself?
Some days, giving in and going home is my bravest act.
When food hurts…when another doctor’s appointment interrupts the day…when I ask for another day off…when I need another ride to the hospital…when I reach for the pain meds…when I can’t sleep at night…when I look fine on the outside, but feel like my insides are on fire…when I pray every night that I haven’t passed this horribleness to my son…when I try to find the simplest answer to a polite “How are you?”…I remind myself , “be brave”…”Be Brave”…”BE BRAVE!”
I must be brave to face the challenges of my disease. There is simply no other way to get through it.
Do you or someone you love need to be brave to fight a disease? Check out Bravelets.com to find the one that helps you fight the hardest. Bravelets will donate $10 of your purchase to the associated cause.
***Today’s post is brought to you by Five Minute Friday and the powerful word “Brave”,which, by the way, popped into my head last night as I lay sleepless once more. As I tried to find something positive to think about, my mind wondered with anticipation to what I would find in my inbox when I went searching for today’s word. I was truly shocked when I actually saw that word–my word–as the prompt for today. I guess someone else thinks I need to write about this. Magical things happen on Lisa Jo Baker’s site every Friday. Please join us.